Happy Thanksgiving Canada!
I can't believe a week has past since my last update. I have a lot to spew but I'm on heavy pain medication (methadone and gabapentin to be specific, and, no, I'm not a heroin junkie!) which has been keeping me sleeping for 15 hrs straight, more if I let myself, and I usually do let myself. I have been walking around like a zombie, I'm so exhausted, see double, have no appetite, feel loopy but also a bit euphoric which is a bonus! And, I'm pretty much pain-free, howevever, I have major weakness in the arm and hand and loss of manual dexterity.
The reason I'm still having so much pain/nerve issues is because, as I expected, they didn't remove all the tumours. They only took out one which they are keeping to use for a vaccine trial that I may be able to partake in next year. So, the tumours that are in me, they press on nerves and that is where the pain comes from. So, sadly, this operation did not make me NED (no evidence of disease), but I knew that wasn't really the plan.
I didn't receive the second opinion from my London surgeon last week, but emailed him Friday and he said he would look at the imaging ASAP. I soooo hope to hear from him tomorrow, with some good news. I'm hoping he can make me NED!
I'll post more when I feel better. I need to get this medication adjusted because obviously I'm non-functional. I can't even drive... what am I saying? I can't even go for a walk I'm so plastered. I hope this all gets sorted out this week so I can live my life again.